Life and Death in America
This column by Bob Herbert of the New York Times struck me in a way that he did not anticipate. It was meant to dramatize the tragedy of leaving people to fend for themselves without universal health care. But, it actually illustrated one of the unexamined reasons why such an entitlement will be impossible to achieve in today's America.
Herbert's column, which he entitled "The Long, Dark Night" begins by introducing Dan and Sharon Brodrick, who have just found out that at 56 years of age, Sharon.....
has cancer of the duodenum and it had already spread to her liver and pancreas. Not only is the prognosis grim, but the medical expenses will soon leave the couple destitute. Mrs. Brodrick has no health insurance.
These are decent hard working people, who by circumstances beyond their control are faced with this overwhelming tragedy. And the condition was dire:
“They opened her up, and then they closed her right up again,” said Mr. Brodrick.
Not only had the cancer metastasized, it was moving very aggressively. Various estimates were given, each one shorter than the last, about how long Mrs. Brodrick might live.
While his wife was being prepped for chemo, Mr. Brodrick sat in the corner of another room and spoke about what it was like to have one’s life all but literally blown apart.
“It tears you down,” he said. “You’d like to fight this with your bare hands, but you can’t. We’ve been married 37 years September 2nd, and when I think about it, it was the quickest 37 years I’ve ever seen go by in my life. It went by in a flash. And we have leaned on each other that whole time.”
Herbert's message is clear; these decent Americans should not be made destitute just because they want the best medical care.
There is just one problem with this story. Based on the description given in the column, chemotherapy was not indicated in this case, since there was "5% or less chance of "success." No one said that a cure was possible; but perhaps, just perhaps, there was less than a 1 in 20 chance of a bit longer life.
Herbert is not interested in something as cold hearted as cost benefit analysis. He wrote a story of a stricken woman who wanted to live, as do we all. Yet the availability of chemotherapy that he implicitly defined as the desired outcome of universal medical care is in actuality a twenty thousand dollar placebo, that the oncologist would be perfectly willing to administer.
Right now he will not do so because these people do not have the money, or if they do, it will cause them to sell their house. But if this were paid for by "universal health care", "the government," and yes, the taxpayer, then there would be no hindrance to having the last days of Ms. Brodrick's life one of false hope and increased suffering. Palliative care just doesn't pay the mortgage- on the Hospital building or a suitable doctor's home.
The nature of democratic politics in this country, if not universally, is to satisfy the needs of the voters, however unrealistic they may be. Perhaps there was a time when elected leaders transcended this, when there was respect for their "wisdom and integrity". Now, with politicians one of the least respected professions, it is either they deliver the goods, or they are out.
So, the pressure would be inexorable to provide every service proffered by the medical profession, the pharmaceutical industry, and anyone else who can convince the public of the value of their offerings. And woe to the office holder who resists comes election time.
All the American voter wants is eternal health and a quick peaceful death after living life to the fullest. And, they can be convinced that the only thing that stands between this goal is the insensitivity of people, like me, who want to shine the cold harsh light of reality on this hope. Who have the effrontery to equate dollars with life.
I do not want to pay for Mrs. Brodricks chemotherapy through my taxes, anymore than I would pay for my own chemo if I had her illness. It is disturbing that Mr. Herbert did not anticipate a reaction such as mine, as if it could only come from someone devoid of human empathy, rather than his readers.
There are many arguments for universal health care, ideally single payer, in this country. But it will never happen; or if it does, it will be a fiscal and social disaster, unless we face the limitations of our political system.
With mandated universal coverage, our political system, our elected representatives, must make the hard decisions that we now hate HMOs for making. Our vulnerable elected representatives must burst the dreams of patients such as Mrs. Brodrick and thwart the avarice of those who feast on their desperation.
I have no reason to believe that our political system is up to this task.
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Comments :
wow.
good read.
Well done....
I often think that people hung up on deficiencies of this system so much so that they get a feeling of hopelessness and tend to want to "throw baby out with bathwater" instead of looking at the causes of our current predicament and the solutions. And once you get to the point of throwing the baby out, you don't want to see the warts of the NHS or the Canadian HC systems.
Now, regarding whether govt would pay for that chemo....it's not obvious to me that they would. 5% of doctors in the NHS system personally know of cases where care was not administered which resulted in death (a situation that only will increase as healthcare costs rise.) But my argument, and it seems it is something you'd share agreement, is that the government shouldn't be the arbiteur of these decisions.
Again, well done.
Our thinking as a society has to evolve
past this crippling fear of death. For such a supposedly religious country we sure cling hard to this mortal world.
Other countries with universal health care generally do limit this type of treatment, right? The hard choices can be made. If we as a country choose to spend more on end-of-life care, that's our call -- I'm guessing when it becomes clear that there is a finite amount of money available people will prioritize accordingly.
I certainly think there should be the option to purchase care beyond that funded by universal coverage. So if someone wishes to sell their house to get treatment they can do that. Perhaps private insurance companies will sell end-of-life coverage, too.
I think you should post this on dKos, it's a question that has to be faced.
Come, my friends. 'Tis not too late to seek a newer world -- Tennyson
On the other hand,
those of us with no religion have nothing in particular to look forward to after death, so the clinging-to-life makes sense for us, too. Just not sure it's a reaction necessarily tied to religion.
I agree with you: it'd be nice if we could offer a basic level of care for everyone, with option to buy into better or more advanced care if desired. But you know that would only move the goalposts, and then people who couldn't afford the better or more advanced care would complain. Possibly rightly so: mortality trumps economics when you're the one on the slab, because numbers don't do you much good. Whether that's a good or bad impulse for society as a whole? ... Well, that's one of those fundamental questions that separates us ideologically.
Saint, n. A dead sinner revised and edited. - Ambrose Bierce
People always complain
If enough people complain, they get what they want, this being a democracy and all. In theory, anyway. So if the goalposts move that's the way it goes -- we've spent more money on stupider things before. But I think at some point there will be widespread agreement that it is not a good use of taxpayer money to marginally prolong the lives of terminally ill patients.
You're right, though, it's impossible to objectively calculate costs/benefits for society when you or someone you love is facing death.
Not to wander off on a tangent here, but I've always wondered how most atheists view death. Is it really lights out, thanks for playing, the rest of existence will now move on without you? Or is there room for a gentler view, in which our lifespans are finite but somehow always part of history, a fragment in time which doesn't disappear even if it moves from the present to the past?
Come, my friends. 'Tis not too late to seek a newer world -- Tennyson
Speaking for myself,
it's "lights out". I'm not sure how other atheists feel, although Vonnegut painted some interesting alternative afterlifes. A purple glow and humming noise, or something like that.
Some people think that's depressing, but I'm not sure why. If you're not conscious of it, you can't be depressed by it. The only depressing part - maybe - is thinking about it now, in terms of the things you'll miss. I can agree with that: but once you're done, there's no you to feel nostalgic about life.
But yeah, I certainly have trouble wrapping my brain around it. It may be no different than a deep, dreamless sleep, except that you usually wake up after that sleep - we think of our consciousness as, as far as we're concerned, eternally present. So really, no idea, but I'm thinking it's lights out. And I won't be around to complain, so no reason to worry about it. :)
Saint, n. A dead sinner revised and edited. - Ambrose Bierce
I wasn't trying to suggest an atheist afterlife
so much as a different way to look at the life we have, as somehow permanent and fixed despite the, ah, inexorable march of time. Like a tape that could be rewound and replayed... even if there's nobody to watch it.
I dunno, I guess I just have a hard time with the idea that this is it.
Come, my friends. 'Tis not too late to seek a newer world -- Tennyson
Shievo (sp?) case points out the irony..
The religious right seemed to be willing to do anything, even denying her actual condition, to prevent her death. One would think that they would be happy to see her in a "better place."
My concern is that our politics have always subordinated reality to......"politics" -staying in office. I remember a few years back when a Governor, perhaps articulating the sentiments as mine, said that "citizens have a duty to die."
He could have said it better, but he never got over that statement. And I don't know whether it is in the DNA of our political system to make decision like this on a reasonable basis.
Maybe I will post it to Dkos, since I used their site to write this with their simple HTLM interface. It's only fair ;)
That is unfortunate phrasing
because it puts the onus on the citizen to do their duty to a larger society and give up the struggle. I don't like the connotations there. Your diary puts it better, it's society that must decide how much we will do for each citizen, and then they can walk the rest of the path how they choose, whether that's going home to die in comfort or selling their house to stay in the hospital and fight.
Come, my friends. 'Tis not too late to seek a newer world -- Tennyson
I would like to think that people are realistic...
...about universal single-payer health care, but I suspect that many-- like Herbert, and like nyceve and and many proponents of single payer on DailyKos and elsewhere-- are not being realistic about the costs of healthcare and the kinds of concessions that will be necessary to implement single payer health care in this country. Instead, they are focused on the failures of the current system and the personal tragedies. The solution is almost an afterthought, and gets very little attention.
It is not just healthcare. I have a book of Herbert's columns, and every column describes a disaster and is littered with these kinds of personal accounts. As heart-rending as some of them are, I find them to be a little hollow when the solutions are not discussed in meaningful terms including costs.
I still believe that single payer is the eventual answer, but I agree that our current political environment is not conducive to producing a solution, not to mention our empty national bank account, and not to mention that we are in not one but two wars! What does it say about us as a citizenry that we are demanding sweeping and costly new government services for ourselves in a time when our troops are in the field, regardless of how we feel about our wars?
So my opinion is that our current focus should be on reducing our involvement in Iraq and Afghanistan, fixing our existing government programs and getting spending under control first-- before we even begin to consider implementing new and expanded programs. Then, at some point in the future, when we are not at war and our finances are on better footing, the atmosphere for addressing healthcare will be better, and I think that we can have a rational discussion about single-payer health care; and that people will be willing, at that time, to accept the kind of compromises that are necessary to keep costs manageable.
Hopefully you will change your mind and post this on DailyKos.
skymutt: wise and powerful... enlightened...
Universal Medicare makes Imigration Reform seem easy...
And the comprehensive, rational, Kennedy McCain Bill ended up as a poison pill for those who supported it.
As a society, rationality isn't the dominant mode of decision making. We want simple answers, whether they work or not. And when someone goes into the complexity, the conundrums, the voters get disinterested. "Hey, we're electing you to solve problems, not to complain about them."
I have a friend on S.S. disability for years, he tells me how his Dr. gets him every diagnostic procedure that exists. "How" I ask, since I know this program, as an extension of medicare, does not do such screening.
"My Doctor just makes up symptoms, and no one checks." So, how much is something like this done. Quite a bit, according to an article in NYTimes that describes how Maimi Medicare clients spend twice the national average, with NO decrease in mortality. It becomes a life style, something to do, that they don't have to pay for.
Single payer, which makes the most sense for universal care, means a strong, intrusive and restrictive government. Or else the situations I describe will flourish. Doctors are no worse than the average American, and that is the problem. Self interest and greed has become our national motto, for a real large part of us.
It is like the housing foreclosure crisis. The Democrats, with the Rupublicans going along for their own Wall Street interests, are for a bailout to some degree. They don't want to think about the basic truth, that prices doubled during the last five years based on irresponsible purchases that they would support.
This means that affordibility would be lessened for all but those with assets, such as houses often obtained by fraudulent mortgages, that the Dems now want to sustain. And the one person who acknowledge the harsh corrective forces of the market place, who said, "when theres more people selling than buying prices go down" is George W. Bush.
I'm reminded of the dissatisfaction of many Russians after communism was gone. "Before there was nothing in the stores, now the stores are full but we can't afford it. It's worse."
Whomever denies what people want is reviled. Right now it is HMOs or companies who don't provide health insurance. Do elected officials really want to be the evil ones. This is why they prefer myths such as preventive care will dramatically cut costs. Another NYTimes article shows this is not the case. But the convenient myth persists.
I just got on Medicare two years ago, and am in a Golden window. In a decade or two the services they now provide will be fiscally impossible, but I don't worry about it, because I probably won't be around.
This is a terribly difficult issue, that touches human pain, having a healthy full life, and existence itself. It is so difficult, that like the immigration issue, it can't even be addressed in the context of partisan acrimony. But this is what our nation, our media, our political parties, and yes, my own Dailykos.com has been reduced to.